Get Started on Physical Healing After Cancer Treatment
Get
Started on Physical Healing After Cancer Treatment
After cancer treatment, people are often elated that the worst is over, and
then quickly sobered by the fact that they don't feel well. There is no doubt
that cancer is a disease that takes a tremendous physical toll. No one knows
this better than someone who has been through treatment for a head/neck/oral
cancer. Wilfred Sheed wrote of his experience with radiation treatment for oral
cancer in his memoir, In Love With Daylight: A Memoir of Recovery. Sheed
noted, "As the [oncologist] reads off the list of possible side- and after-effects,
to run concurrently and forever, it's awfully hard to remember that this guy
is supposed to be on your side. There he is, about to kill off thousands of
your favorite cells, adding up to a large tract of the body that brought you
this far, and they call this man a healer! Talk about bombing villages in order
to liberate them; talk about napalming whole forests on suspicion. For all anyone
knew, I might not even have cancer at this stage. But bomb we must. One
can't be too careful." In her memoir, A Season in Hell, Marilyn
French who was diagnosed with esophageal cancer wrote this about physicians,
"Simply to treat cancer means they must violate the primary tenet of their
code: First, do no harm."
The current treatments
for cancer, while providing significant opportunities to patients for prolonging
their lives, remain very toxic. In fact, very often for someone diagnosed with
a malignancy, the illness is causing few if any problems at the time of discovery.
This means that patients often feel much better physically at the beginning
of cancer treatment than at the conclusion.
I am a breast cancer
survivor and a rehabilitation doctor at Harvard Medical School. When I was going
through cancer treatment, I realized that I would have to work hard to heal
myself. However, I was exhausted, so I focused on the key things that are important
in physical healing. I wrote about these in my book
After Cancer Treatment: Heal Faster, Better, Stronger (Johns
Hopkins University Press). In this article, I will focus specifically on
how to help you get started on the path to healing well if you've undergone
treatment for cancer.
No matter what
kind of cancer you have been diagnosed with, what stage it was at the time of
diagnosis, what treatment you have undergone and where you are in the healing
process, now is as good a time as any to work toward healing optimally. Though
there are a number of important concepts in physical healing, to get started,
consider these three steps:
Step
1 - Heal like you're an athlete.
Physical therapist
and sports trainer, Bill Fabrocini, has helped many athletes recover from serious
injuries. However, perhaps no athlete has made a more remarkable recovery than
snowboarder, Chris Klug, who was close to death before he received a liver transplant.
Klug recalls, "I was in the 11th hour of the transplant waiting process.
When I got to that 11th hour, though, I started to lose hope."
Though Klug was
fortunate to get the life-saving organ, he was physically devastated from the
long wait and the surgery itself. After the operation, Fabrocini took over.
He shared with me his thoughts about helping Klug, and others with serious injuries,
recover. Fabrocini explains, "I did a lot of working around the injury-all
of the other segments of his body. I got him to think about all of the uninjured
areas, and to start to focus on the areas of his body that were working positively-that
were uninjured. Then, I connect all of those areas together so that the body
starts to work again as a "whole." This is what breeds confidence."
One and a half years after his transplant, Klug became an Olympic snowboarding
champion.
So the first step
in healing from a serious injury or illness is to start using whatever parts
of your body are uninjured or the least injured. Most cancer survivors can begin
by using their legs. Which leads us to Step 2.
Step
2 - Buy a pedometer and record how many steps you take each day.
Therapeutic exercise
is designed to specifically combat the effects of serious illness or injury,
which leave people weak and tired. For anyone who has been through cancer treatment,
a major part of healing involves recovering from the "deconditioning"
that occurs due to immobility and sometimes bed rest. One of the most striking
effects of bed rest happens at the muscular level. Research has shown that people
on bed rest lose 1-1.5% of their strength per day for the first two weeks. For
those who have a limb in a cast, the rate of strength loss is higher-up to 5.5%
per day. The total loss of strength can be as high as 25-40% in those individuals
who are inactive for a period of two weeks or more. Marked losses in muscular
strength occur even in those who are not on bed rest but who become sedentary
due to a medical condition such as cancer. Losing strength in muscles occurs
with no effort and happens extremely quickly. Gaining strength back takes considerable
effort and occurs much more slowly.
Strengthening your
body and working to build up your stamina will help reduce pain and fatigue
and will almost certainly improve your mood. Although I always recommend that
people check with their doctors before beginning to exercise, almost anyone
(notable exceptions include those individuals with serious heart or lung problems)
can safely begin this first step before they consult with their doctor. However,
as you progress, be sure to check in with your physician.
So this step is
to literally count your steps. I recommend buying a pedometer (these are inexpensive
and can be found at most sporting goods stores and there are many online dealers).
Obtain one that specifically counts the number of steps you take daily and record
your steps for a week. What is the average number of steps you are taking?
Your 6-week goal
should be 5000 steps per day. That means that wherever you start off, increase
gradually by a few hundred steps per day in order to reach the 5000 mark. Once
you reach the 5000 steps per day goal, then your next goal is 10,000 steps per
day, and you can usually accomplish this over a period of 6-12 weeks. If you
start out at around 5000, then your 6-week goal is 10,000 daily steps. Between
5000-10,000 steps per day is a good range for most people.
Using a pedometer
is one way to increase your activity level and improve your overall conditioning
and endurance. You'll start feeling much better as you are able to increase
the number of daily steps you take.
Step
3 - Give up taking naps and sleep well at night.
Poor sleep, no
matter what causes it, is detrimental to physical healing. Naps tend to interfere
with good sleep at night and are usually better to skip once you are finished
with cancer treatment--especially chemotherapy and radiation. At night, it may
be hard to fall asleep or stay asleep due to worry or pain.
Insomnia, which
is difficulty falling asleep or staying asleep, affects up to 50% or more of
cancer patients. This condition almost always is part of a cluster that may
include pain, fatigue, anxiety, and depression. Each of these medical problems,
left untreated, has the potential to exacerbate the others. For example, poor
sleep can contribute to a mood disturbance such as depression (think of women
with post-partum depression who are sleep deprived-while there are also other
factors that affect this condition, such as hormonal influences, lack of sleep
is clearly an issue in this population) and someone who is depressed may have
difficulty falling asleep or staying asleep because he is sad or worried.
It is important
to note that pain is one of the primary causes of insomnia and appropriate intervention
to treat pain can improve the physical symptoms of pain and fatigue as well
as the emotional symptoms of depression and anxiety. On the other hand, attempts
to treat pain can actually lead to or worsen symptoms of insomnia. For instance,
opioids can cause daytime somnolence, which may interfere with sleep at night.
Clearly this is a delicate balance and one which requires an experienced physician's
input. If you are not getting at least 7-8 hours of quality sleep most nights,
talk to your doctor about how you can improve your rest.
Step 4 - Pace yourself during the day.
One of my favorite
quotes on the topic of pacing was written by Hugh Gregory Gallagher, a polio
survivor who struggled with the debilitating after effects of this disease.
Gallagher wrote, "My muscle power and endurance are as coins in my purse:
I have only so many and they will buy only so much. I must live within my means,
and to do this I have to economize: what do I want to buy and how can I buy
it for the least possible cost?" Regardless of where you are in the healing
process, you only have so many "coins." In order to optimally recover,
you will need to use your muscle power and endurance wisely. Healing is not
about pushing yourself to the limit without consideration for what tasks are
important or how they will affect your body. Rather, healing well involves a
thoughtful approach where you set goals and modify your activities to achieve
those goals. While healing well does involve physically challenging your body
to improve strength and endurance, it also involves periods of relaxation and
rest. In short, in order to heal well you need to prioritize and pace.
Keep in mind that
if you have a list of priorities and you refrain from doing the various things
that are not meaningful to you, then you will maintain a good quality of life
despite any physical limitations. Which means that more than likely you can
do what you want to do as long as you avoid doing things that aren't all that
important.
Thinking about
this another way: now is your chance to unload all of the boring, mundane, and
monotonous tasks that you never enjoyed doing anyway. Regardless of whether
you decide to hire people and use various services to decrease your "to
do" list, this is a good time to let friends know how they can help. You
certainly can do this in a very considerate way that will not overly burden
those you are close to. For example, ask a friend to take your clothes to the
dry cleaners when she takes her own. Or, inquire when your friend is next going
shopping and ask whether he could pick up a short list of items for you at the
same time. Finally, there are plenty of things that you probably did in the
past which simply don't need to be done at all or at least in the same way.
The suggestions
I have thus far made are just that-suggestions. In order for you to have a good
quality of life and optimize your ability to heal, you will have to decide for
yourself what tasks are most important to you and how you can best accomplish
them.
As you focus on
healing from cancer and its treatments consider incorporating these four steps
into your plan. They'll help you to heal faster, better and stronger.
Author:
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Julie
Silver, MD is a breast cancer survivor and the author of
the newly released book, After
Cancer Treatment: Heal Faster, Better, Stronger (Johns Hopkins University
Press), available in bookstores and through Amazon.com. She is
an assistant professor at Harvard Medical School in the Department of
Physical Medicine and Rehabilitation. Dr. Silver is also the founder and
director of RESTORE, a multi-disciplinary program that focuses on physical
recovery after cancer treatment. Dr. Silver is a recipient of the 2006
Lane Adams Quality of Life Award, the most prestigious honor given to
caregivers by the American Cancer Society.
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